Wednesday, June 17, 2015

Have You Missed Me?


If you follow me on Facebook, you may know what has been going on in my life that has kept me from blogging, posting, writing…living.  But if not, here’s the condensed story.

Sixteen months ago, I started having pain on the left side of my head at the base of the skull that went over the top and into my eye.  My hearing blocks off randomly and I have ringing and other sound sensations.  I went to an ENT, and they sent me to an audiologist.  When I returned, the ENT asked me if I had Multiple Sclerosis (MS) because the muscles in my ears weren’t working properly.

This diagnosis began a long series of tests, doctors and the waiting game.  With every doctor I went to see, he/she found something else wrong.  I just wanted my head to quit hurting. The neurologist said I had MS based on all the lesions in my brain and on my spine.  Later, she and the radiologist changed their minds and the neurologist said to be retested in six months to a year.  Meanwhile through the MRI and CT-scans, they found a mass on each adrenal gland, and told me I also had an abnormal bone growth at the base of my skull.

I was sent to a specialist for Paget’s disease, but he said I didn’t have that. I asked who I should go to about the abnormal bone growth and he said to go back to the neurologist.  She said she didn’t know what to do and sent me to a rheumatologist.   He said I had osteoarthritis but my case was too complicated and it didn’t make sense.  He said to go back to the ENT.

The ENT didn’t want to see me again.  I told the assistant someone needed to look at the MRIs and CT-scans and figure out who I should go to.  They decided on a specialist not covered by my insurance and set about getting approval for me to see him.  When I finally got an appointment, he said I had fluid or infection in the middle of my brain which required a craniotomy to move the left hemisphere of my brain out of the way to get to the center.  He said it was too risky, and he didn’t want to do it.

I asked him, “What about the abnormal bone growth at the base of my skull?”

He said, “Same thing.”

Same thing? Really?

He did refer me to a spine specialist who said I had degenerative disc disease with two bulging discs in my neck.

I asked, “What about the abnormal bone growth at the base of my skull?”

“I don’t know.  Go back to whoever told you that.”

After sixteen months and ten doctors, I find myself in worse shape than when I started.  For sure, I’m not going to any more doctors.  They’ll just find something else wrong.

Many days I spend in bed or sitting like a zombie unable to think clearly with all the pain, dizziness, nausea and other symptoms going on in my head.  I’m sure you can understand why I’ve found it difficult to write and especially write with humor.

I appreciate your support and understanding over these long months.  I may still be on and off the Internet as I work to improve my health without the aid of traditional doctors.  I have been plugging along as much as I can on my latest book.  I hope you will still be following me when it finally gets published.

Cindy A. Christiansen
Sweet Romance, Humor, Suspense...and Dogs!
Fly into a good book at: http://www.dragonflyromance.com

Dog Photo Copyright: pitrs / 123RF Stock Photo 

P.S. The actual ordeal was much more difficult and complicated, but the important thing is that I am working to get back to writing and life.



4 comments:

  1. I'm sorry for all your health issues. Please know that you are in my thoughts and prayers. Take care!

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    1. Thank you so much. I can use the prayers. I had a blessing and that really helped. I'd like to believe my health will get better and better. :)

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  2. The whole ordeal sounds agonizing and confusing. I do hope you find the answers you need. (((hugs)))

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  3. Thank you, Nancy. I wish the medical world was easier and faster to maneuver. :)

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